In 2021 Maisie experienced trauma to her neck from an injury. At first Maisie seemed ok but soon after she started to feel very unwell, her neck and forehead lost sensation she started feeling a lot more anxious than usual and started experiencing tinnitus in her ears. Maisie did reach out to her GP for help but was told it was probably just an ear infection and was given antibiotics, after the course of antibiotics nothing had improved and at this point Maisie could not leave her bed. her symptoms got so bad that her parents had to call an ambulance for her to be taken to hospital. At the hospital she was told she was probably just experiencing mental health problems due to everything going on with the pandemic and without a blood test or any type of scan on her neck she was discharged. 

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Fast forward and Maisie had gotten used to the symptoms that she experienced on a daily basis but tried her best to just move forward with her life, this was very difficult to do as her neck and forehead still felt numb and she still experieced tinnitus and her anxiety held her back from doing many things. From 2021-2024 we have tried to do our own research as to why Maisie is feeling the way she is, as she wasn't getting taken seriously from her doctors or hospital. 

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Maisie tried her best to enjoy life as much as possible and in 2023 we welcomed our daughter into the world, having a newborn was tough but Maisie once again tried her best to push all her symptoms to the side and focus on our little girl. We loved going to the park to the farm and going to soft play as a family.

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At the end of 2024 this was all taken from us as Maisie's condition suddenly started to get worse, it all happened very unexpectedly. It became obvious very quick that this was going to be worse than the first time that Maisie became ill. her symptoms got worse, she started feeling like her head is to big for her body, vertigo, bad co ordination, and sometimes she was struggling to speak. She cannot leave her bed again and she sleeps for most of the day. We were forced to look for answers quick that was how we found Craniocervical Instability and that was when everything started making sense to us. 

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We quickly learned that no one in the UK deals with CCI and that there is currently no treatment for the condition in this country or any other country except for Spain and the USA. We found a doctor based in Barcelona that deals with the condition and we found out what scans were needed to diagnose CCI and we managed to get a consultation with him where he could look at scans. Maisie managed to get the scans that were needed and we sent them over and during that consultation Maisie was diagnosed with CCI and was told that the only way she would ever be able to get better is by having surgery and that it is needed as soon as possible as the longer it is left untreated the worse Maisie's condition will get. 

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It is now March 2025 and Maisie is not doing good she is now in bed for most of the day and has to wear a neck brace as she cannot hold her head up by herself and things will continue to get worse if she does not get help soon.

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Maisie needs help as soon as possible without this surgery I don't know how much longer she will survive so please if you can donate and share Maisie's story. Thank you for reading.